Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are ...
The Genetic and Rare Diseases (GARD) Information Center is a program of the National Center for Advancing Translational Sciences and is funded by two parts of the ...
A rare disease, also referred to as an orphan disease, is any disease that affects a small percentage of the population. Most rare diseases are genetic, and thus are ...
Rare diseases are usually genetic, but environmental factors can play a role. Take a look at the top 10 rare diseases that you may never have heard of.
CORD is Canada's national network for organizations representing all those with rare disorders. CORD provides a strong common voice to advocate for health policy and ...
The Journal of Rare Disorders is an online journal that provides a forum for original research and editorials on diagnosis and treatment of rare diseases.
Contact a Family - Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare ...
5 Hypohidrotic Ectodermal Dysplasia. Also known as the vampire disorder, people who suffer from Hypohidrotic ectodermal dysplasia often have pointed teeth ...
The National Organization for Rare Disorders (NORD), a 501(c)(3) organization, is the leading voice of the rare disease community. We are a unique federation...
A legacy fact sheet from NICHCY February 2011 | Updated, March 2015 “Alone we are rare. Together we are strong.” Slogan of Rare Disease Day —February 29, 2012.